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Community Resource Guide

Provided by the United Way of Northeast Florida

Disease/Disability Registries

Code: LH-1800

Programs that maintain databases that contain information about people who have been diagnosed or have risk factors associated with a specific type of disease, and who have been treated by or received preventive care interventions from a particular hospital or live within a particular geographic area. Registry information is used by public health authorities to identify and investigate unusual patterns of occurrence of the disease and can help communities plan for and deliver needed medical services. It can also be used to support care management for groups of patients with one or more chronic diseases, such as diabetes, coronary artery disease or asthma (or those with associated risk factors); and to connect people with programs doing medical research. Registries also exist for some disabilities, notably pregnancy registries for women with epilepsy and registries for people with rare forms of epilepsy.

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